Janka´s journey

This is Janka´s blog about travelling with Cystic Fibrosis.

Friday, January 26, 2007

leaving in less than an hour!

OK.....I'm shite with writing this. but this time it wasn't slackness but worse....even though I vowed to myself to keep writing even when things healthwise aren't great I screwed up an stopped anyways. I suck.
ah...can you all hear the violins....?! hehe, enough of this.
For the few of you who have kept reading this - here's another post.

So I should start where I finshed off - the surgery. I know it was neccesary, the doctors said that due to the amount of polyps in my sinuses I should have constantly been suffereing from headaches...which I guess means :"don' wait another 16 years, stupid!" But the time after the surgery was a bitch, really. I mean, I was doing quite well, you all might remember me bragging about going for a daily run in holland....and I woke up in the hospital and couldn't even cough anymore. Nor walk. No strenght at all, just gone. Now that really sucked, I can tell ya. I mean, there I am, exercising like an idiot for 3 months, eating healthy and all and I go into the surgery, fall asleep from the anesthaetics (spelling?!), wake up and everything is just gone. Out the window.Talking about some frustration...

I have to admit, everyone actuallly told me that something like this would happen but...yeah, I reckon I just thought it would be different with me. Dunno why. Hey, they say ignorance is bliss, eh?!

Anyway, I had to stay in the hospital for a week and during that time I tried to get up and walk around as much as possible so my lunds wouldn't get worse. Also nebulising with the hypertonic saltine solution helped getting all this shit out of my lungs. But nebulising was so exhausting all of a sudden, and the coughing really didn't feel too great whith these cotton thingies up my nose....I think I might put up a picture or two so you'll see that I'm not exaggerating here...;)

OK, I got home quite thrilled that I hadn't picked up a nasty bugg in the hospital, what happens next - i get sick. Just normal winter thing, but with me being everything but tops after the surgery....not good.

Me being a frustrated, grumpy, in self-pity drowning biatch I thought it'd be best for everyone if i went to live with Arja and Jelmer in Holland again since mentally, emotionally and physically I felt great there but because I had ENT appointments every other day I had to cancel that. Now talk about some frustration...;)

Surprisingly my lung function a month after the op hadn't gone down, I still felt shite and somehow survived x mas and slept through new year's eve.
I changed antibiotics which didn't do anything but my lung function got worse to 45%. Great.
3 weeks ago I started another antibiotic IV which made me feel better, but the lung function is still the same.
So there ya go, I've had better news.Hope it'll get better.

Anyway, in about half an hour I'm going to the airport, flying out to London to stay there for a coupla days and see Mark (Tick bite fever mark I met in South Afrika) and on Monday I'm off to Adelaide, Australia where Jaan's gonna pick me up, more or less on time....hehe! (thanks to you both for letting me stay at your places!!!)

so I speak to you all when I'm in oz....via email or hopefully I'll post more regularly!

xxx J.